Ann's favorite Noonan Syndrome resources.
Noonan Syndrome Support Groups
We are here to support all who are connected to the RAS-MAPK Pathway group of Syndromes........Noonan Syndrome, LEOPARD Syndrome, Costello Syndrome, Legius Syndrome, CFC Syndrome, NF1, Hereditary Gingival fibromatosis type 1, Capillary malformation-AV malformation syndrome, and Autoimmune lymphoproliferative syndrome
- Noonan Syndrome Website: www.teamnoonan.org
- Noonan Syndrome Noonan Syndrome on the Web
- Genetic Home Reference on Noonan Syndrome
- Noonan Syndrome Foundation(according to their web site, this is no longer a branch of the RASopathies Foundation)
- The Noonan Syndrome Support Group (TNSSG) Although it still has some online presence, TNSSG dissolved in March 2013.
- RASopathies Foundation Website: www.teamrasopathies.org
- Shop: www.shopteamras.com
Facebook Support Groups
- Facebook (Closed Group):
https://www.facebook.com/groups/rasopathies/?fref=ts - Facebook: Noonan Syndrome Foundation: Online Support Group
- Facebook (Public Group): https://www.facebook.com/NoonanSyndromeFoundation
- Facebook (Public Group):: https://www.facebook.com/groups/rasopathies/
- Facebook (Closed Group): https://www.facebook.com/groups/Noonansyndromefoundation/
- Please like Facebook Page: Noonan Syndrome Foundation Facebook
- Facebook: RASopathies Foundation: Online Support Group
YouTube:
Stay Updated on Twitter
- Subscribe to #Noonan Syndrome at Twitter to get the latest tweets
Favorite Parent Run Websites
- Blog: Noonan Syndrome Foundation Blog
- Team Noonan
- Keeping up with the Tiny Titan by Ann Yurcek
Blogs and Articles
- My daughter, my heart - by Ann Yurcek
- ABCS of Living with My Noonan Syndrome - by Rebecca Yurcek
